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Hepatitis C in Children

Child Youth Health
... again be no particular symptoms. After a person has been found to have hepatitis
C, regular blood tests will be done to check that the liver is working well. ...
http://www.cyh.com/cyh/parentopics/admin_srchl2.stm?topic_id=224 

For Parents Who Have Children With Hepatitis

http://www.egroups.com/group/hepcan-kids

Very cool page within Dr. Koop's Hep C site that has links to storybooks designed for the children of Heppers
http://ferrari.dartmouth.edu/multimedia/storybooks.html

Childhood Infections - Hepatitis
Hepatitis Signs and Symptoms As you might suppose from its name (hepar=liver, itis=inflammation) hepatitis means an inflammatory process involving the liver. Most often the cause of hepatitis is a viral infection. .....
http://kidshealth.org/


PKIDs
PKIDs - for families of kids with infectious diseases, and for the kids themselves, offering information and support with other programs available for the asking. We are a place for families to connect, get questions answered, and get help.
http://www.pkids.org/

HepKids - HepKids is a meeting place for children whose parents and loved ones have HCV

http://www.hep-c-alert.org/hepkids/



Childs-Hugh Grading System for Cirrhosis
http://hometown.aol.com/chiaungo/profes/CH-Chil.htm
 

Other Conditions Related to HCV

Janis and Friends Hepatitis C Support Web Site

We have a chart of easy to read  HCV related conditions

http://janis7hepc.com/Related%20Conditions.htm

Autoimmune hepatitis
Autoimmune hepatitis is a type of chronic active hepatitis . Cellular immune reactions may be a cause of chronic active hepatitis. A variety of circulating autoantibodies can be found in the blood of patients with chronic active hepatitis.
http://www.drkoop.com/conditions/ency/article/000245.htm

Hepatitis as a Result of Chemicals and Drugs
Learn what drugs and chemicals can cause hepatitis.
http://www.healthatoz.com/atoz/hepatitis/hepres.asp

 

Diseases Associated with Hepatitis

Here is a link for diseases associated with Hepatitis
http://www.geocities.com/hotsprings/spa/7563/diseasesindex.html

Information about Hepatitis C and Diabetes
http://www.geocities.com/HotSprings/2630/diab-mn.html

Url to sjogrens (can be related to Hep)
http://www.sjogrens.com/

Thyroid Disease
http://www.delphi.com/ab-thyroid/start/

Lupus and the Liver
LUPUS and the Liver Daniel J. Wallace,M.D. Associate Clinical Professor of Medicine, UCLA School of Medicine A selection from the Lupus Foundation Of America Newsletter Article Library (originally appeared in Lupus .....
http://www.hamline.edu/lupus/articles/Lupus_and_the_liver.html

Alcohol and Hepatitis C.......

Independent and combined action of hepatitis C virus infection and alcohol consumption on the risk of
symptomatic liver cirrhosis - Paper published on Hep Net from the Hepatology Journal
http://hepnet.com/hepc/worman33198.html

Impact of alcohol on the histological and clinical progression of Hepatitis C infection - Paper published on Hep Net from the Hepatology Journal
http://hepnet.com/hepc/worman101898.html

 

Co-Infection HIV  HCV and HBV


The staff of HIVandHepatitis.com is a group of individuals closely linked to the communities of people living with HIV, hepatitis B, and hepatitis C virus infection. Their common objective is to create a quality on-line publication that provides practical, reliable information about treatment and experimental vaccine options for these chronic conditions.

http://www.hivandhepatitis.com/

NATAP

http://www.natap.org/

HCV and Aids
 
http://www.hivandhepatitis.com/hiv_and_aids  ... Infection
http://hivatis.org/hepatitisC.html  ·
http://www.orau.gov/meo/manuals/treatment/05-Subject.pdf 

Frequently Asked Questions and Answers About Coinfection with HIV ...

www.cdc.gov/hiv/pubs/facts/HIV-HCV_Coinfection.htm - 25k

HCV Advocate: News and information website on HCV and HIV/HCV coinfection
http://www.hcvadvocate.org

HCV Prison News: A new website dedicated to hepatitis C and HIV/HCV coinfection in prisons
http://hcvprisonnews.org

HIV and Hepatitis C Co-Infection: ATIS 

 

Financial  Assistance for HCV Treatments (also) Help with  Disability and SSI

Schering's COMMITMENT TO CARE SM Program Dealing with any illness and its treatment can be expensive, so it is very important for patients to know their financial rights and options. Schering's COMMITMENT TO CARE is Schering Oncology/Biotech's drug

http://www.beincharge.com/resources/index.htm

The Costs of Wellness
Of course, all of this can be costly. For instance, the monthly cost for Peg-Intron can range from $2,796 to $3,444, according to Schering-Plough – more than most Americans can afford. And since approximately 38.7 million Americans don’t have health insurance, that can be a problem for many people. Luckily, there are ways to get treatment for everyone.

For starters, you might consider joining one of the studies conducted around the nation for new drugs and treatments. Lawitz says this may be not only an affordable way to get treatment, but you’ll be treated by some of the most knowledgeable people about hepatitis C in the country. He personally heads up 88 centers in 30 states, which amounts to about 1,700 patients nationally. "The best way to find out about studies," he says, "is to call the university or academic center in your area. They’re usually aware of the available programs." Talking to those in support groups is another way to get information. If you can’t find a group in your area, log onto www.hepc-connection.org or www.hepfi.org for lists of support groups.

The Internet is another valuable resource for finding studies. Look at the American Liver Foundation’s Web site, www.liverfoundation.org, and click on their "Clinical Trials" link for information about how to find a study in your area. And of course, the drug manufacturers are probably the best source for finding clinical trials because they sponsor them. Call the customer service department at each one to find out more.

But if you’d rather not participate in a study, there are some programs to help with the cost of the drugs. For instance, Schering-Plough has its Commitment To Care Program for those people without insurance. The program is based on individual needs and income levels and will offer assistance to those without insurance, those whose insurance companies have denied payment, or even those whose deductibles are higher than they can afford. Doctors can recommend patients, or HCV patients can call them directly at (800) 521-7157 for more information.

Intermune, the manufacturer of Infergen, has formed an alliance with CoVance to create the Infergen Patient Assistant Program for uninsured patients. For more information about this program, call (800) 577-9112.

And finally, Hoffmann-La Roche offers an Indigent Patient Care Program that works much the same as Schering-Plough’s. Because each case is evaluated on an individual basis, it’s best to call them at (800) 526-6367 to determine whether or not they can help you with the cost of the medication.

Free Prescription Medicine is Available to those who Qualify.

If you do not have insurance or a government program that pays for your outpatient prescription medicines . . .

If the high cost of your Medicine causes you a financial hardship . . .

You may qualify to enroll in a privately sponsored program which provides. . .

Check this out at: http://www.themedicineprogram.com/

There is help available for the many millions of people who have no insurance and can't afford to purchase their medicines. NeedyMeds is the place to learn about patient assistance programs and other programs designed to help those who can't afford their medicines. NeedyMeds is not a program. It's an information source


 

Hepatitis C and Disability

Janis and Friends

http://janis7hepc.com/Ins%20&%20Financial%20Aid.htm

"THE DRAGON" (HEPATITIS C) GOT YOU DOWN ?
.......CAN'T WORK ANY MORE?............
 

Please visit Mikes site, he has so much information on Social Security and Disability. He is a dedicated member of our HCV community. He shares all his information with all of us. He even let us put it right here on our site.  Thank you MIKE !!

http://heppie2000.tripod.com/index-3.html

 

Disability-Specific Web Sites
 Hepatitis c disability benefit
 

Social Security Disability for Hepatitis C Patient?
 

HEPATITIS C AND DISABILITY
 

http://www.needymeds.com/

Links - Free/Discount Meds

http://www.mcmanweb.com/free_meds.htm

Directory of Prescription Drug Patient Assistance Programs: 2001-2002

http://www.hivandhepatitis.com/recent/pricing/121001e.htm#dir

Please go to this site named Veritas Medicine to see if you fit into any of these trials. Go through this whole site, it's very informative.

http://www.veritasmedicine.com/d_index.cfm?did=7

Also here's a link to sign up to receive Personalized Trial Notification and future Informed Decisions as they are published.

https://www.veritasmedicine.com/users/user_registration.cfm?vp=1&tr=1&did=7

if you are in the chicago area there are several trials going on now many with pegasys go to www.rush.edu and go to the bottom of the page click on clinical research that will take you to another page scroll to hepatology and you will find the info

Check out the following Link for Clinical Trails. http://www.centerwatch.com

http://www.liverlifeline.com/clinicaltrials.html.

This site explains all about clinical trials FAQ etc.

http://www.va.gov/hepatitisc/pted/clinicaltrials.htm

 

Handling Disability Examinations www.cfsdoc.org/disabil.htm

Social Security Admin. Online 

www.ssa.gov/SSA_Home.html

SSA Disability Information  www.ssa.gov/odhome/odhome.htm

SSA How To Apply 

 www.ssa.gov/howto.htm

SSD Reviews 

www.ssa.gov/pubs/10068.html

SSD's CFS Fact Sheet 

www.ssa.gov/odhome/cfsfacts.htm

Toll Free Numbers To Agencies 

http://macdds.org/m_toll.htm

When we emailed Mike to ask him if we could use his information. He was more then happy to share it will all. This is only a example of all the great people out there helping those with Hepatitis. Thank you so much Mike, you are one in a million. Please visit Mikes site  http://heppie2000.tripod.com/index-3.html

 

   
                          Reviewed on Oct 29 2003