FAQ Page Ten
Back To Complete Index of FAQ APPENDIX A: Where to Get the Current Version of the FAQ APPENDIX B: Common Abbreviations and Medical Terms APPENDIX C: Some Recommended World Wide Web Sites APPENDIX D: A List of Canadian Doctors Specializing in the treatment of HCV
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WHERE TO GET THE CURRENT VERSION OF THIS FAQ E-Mail : send a message to Peppermint Patti at clotho@bellatlantic.net, or to C.D. Mazoff at squeeky@pacificcoast.net and say “Send me the FAQ please!” http://members.bellatlantic.net/~clotho http://www.geocities.com/HotSprings/5670/ http://members.rogers.com/smking/ www.hepcbc.ca Includes Spanish Version --- COMMON ABBREVIATIONS Below are shown common medical abbreviations that HCV people often come across. MEDICAL ABBREVIATIONS AND TERMS ALT - Alanine aminotransferase - a protein which, when found in the blood in elevated quantities, generally indicates liver damage. Also sometimes called SGOT. ANTIBODY - A protein secreted by cells of our immune system in response to infection. The antibody binds to an “enemy” molecule, in this case, a specific part of the hepatitis C virus. This is meant to prevent the virus from infecting other cells or destroy it. As with other viral infections, the presence of antibodies does not necessarily mean a virus will be eliminated from the body. AST - Aspartate aminotransferase - a protein which, when found in the blood in elevated quantities, generally indicates liver damage (although less specific for liver damage than ALT). Also sometimes called SGPT. BLOOD & BLOOD PRODUCTS - Components of blood including red cells, platelets and plasma which are separated out by blood banks. Plasma is processed and purified to produce specific medical purposes, e.g., Factor VIII. CARRIER - Practically all people who are HCV+ “carry” the virus. The term “carrier” is often misused, though, to mean someone who has the hepatitis C virus yet is in good health. In regard to hepatitis C, the term “carrier” is used less and less. Better definitions of illness status include “antibody positive” or “antibody negative”; “symptomatic” or asymptomatic”. Most important to note, is that all people who are hepatitis C antibody positive need to be aware of potentially passing on the virus. CBC - complete blood count CDC -- Centers for Disease Control and Prevention (USA agency), responsible for estimating prevalence rates and making epidemiological studies CIRRHOSIS - A condition where scar tissue develops in the liver - to the extent where such scaring becomes extensive and permanent. Cirrhosis interferes with the normal functioning of the liver. COQ10 -- co-enzyme Q10, a naturally occuring substance which some patients find helpful; available without prescription DHHS -- Dept. of Health and Human Services (USA agency) FATTY LIVER: abnormal lipid increase in the liver, probably related to reduced oxidation of fatty acids or decreased synthesis and release of lipoprotiens, causing inadequate lipid clearance from the liver. FDA -- Food and Drug Adminstration; a USA agency which regulates drug approvals, nutritional supplements, and food quality and labeling FIBROSIS - Scar formation resulting from the repair of tissue damage. If it occurs extensively in the liver it is called cirrhosis. GENOTYPE - Different genotypes of the one virus are similar enough to be regarded as the same type but have some minor differences in their RNA composition. These differences may mean the virus reacts differently to our immune response or to drug treatments and natural therapies. HCC - Hepatocellular carcinoma, or liver cancer. HCV -- Hepatitis C Virus HEMOCHROMATOSIS: excess of iron absorption and presence of iron-containing deposits (hemosiderin) in liver, pancreas, kidneys, adrenals, and heart. It may be associated with hepatic enlargement and insufficiency and esophageal bleeding from varices. HEPATIC COMA, CHOLEMIA: peculiar syndrome characterized by slow or rapid onset of bizarre behavior, disorientation, flapping tremors of extended arms, and hyperactive reflexes, and later lethargy and coma. It seems to be caused by intoxiation with ammonia, a product of protein digestion that the diseased liver fails to convert into urea. HEPATIC ENCEPHALOPATHY: serious complication of advanced liver disease probably caused by cerebral toxins, including ammonia, certain amines, and fatty acids. It is clinically manifested by personality changes and impaired intellectual ability, awareness, and neuromuscular functioning. HEPATIC FAILURE, FULMINANT: clinical syndrome caused by extensive necrosis of the liver, which may be induced by hepatoxic drugs and may lead to progressive encephalopathy and a fatal prognosis. HEPATIC NECROSIS: destruction of functional liver tissue. HEPATITIS, VIRAL: acute or chronic inflammation of the liver caused by the hepatitis virus A, B, C, D, E, G HEPATOMA: tumor of the liver. IVDU - Intravenous drug use IVIG -- intravenous gamma globulin NIH -- National Institutes of Health (USA agency); largest medical research institution in the world NON-A NON-B HEPATITIS - The old term for hepatitis shown not to be caused by the A&B viruses. In 1988, this form of hepatitis was shown to be mainly caused by HCV. NSAID -- non-steroidal anti-inflammatory drugs; examples: naproxen, ibuprofen; used for pain PCR -- polymerase chain reaction; a DNA technique used for identifying viruses and other life forms PORTAL HYPERTENSION: a portal venous pressure greater than 20 mm Hg associated with splenomegaly, increased collateral circulation, varicosity, bleeding and ascites. It may result from: INTRAHEPATIC BLOCK: block within the liver, or - EXTRAHEPATIC BLOCK: block within the portal vein. SGOT - (See ALT) SGPT - (See AST) SSA - Social Security Adminstration (USA agency), responsible for retirement and disability benefits SSDI - disability benefit program form the SSA (USA) VIRAL LOAD - The amount of virus present in a person’s bloodstream. It is usually measured by the PCR quantitative test and the result is given in number of virus particles per ml of blood.
APPENDIX C - SOME RECOMMENDED WEB SITES (in no particular order) ARE: Peppermint Patti’s Junk Drawer: http://members.bellatlantic.net/~clotho HepCAN: http://groups.yahoo.com/group/hepcan HepCBC: www.hepcbc.ca, Email: info@hepcbc.ca HCV Advocate: www.hcvadvocate.org Hepatitis Education Project: www.scn.org/health/hepatitis American Journal of Gastroenterology: http://www-east.elsevier.com/ajg/ British Medical Journal: Search All Issues: http://www.bmj.com/all.shtml Hepatic Pathology Index: http://www-medlib.med.utah.edu/WebPath/LIVEHTML/LIVERIDX.html Hepatology: Search Abstracts HIV and Hepatitis.Com: www.hivandhepatitis.com Journal of the American Medical Association: http://jama.ama-assn.org/ Mescape Hepatitis C Resource Centre: http://gastroenterology.medscape.com/Medscape/features/ResourceCenter/HepC/public/RC-index-HepC.html New England Journal of Medicine:http://content.nejm.org/ PovNet: http://www.web.net/povnet/ Reuters Health Information: http://www.reutershealth.com/ Ask Emaliss - Hepatitis Info Support: http://www.askemilyss.com/ The Hepatitis Foundation International Online (NJ): http://www.hepfi.org/ Scotty (the.Reezer) Warren’s Hepatitis HomePage: http://tinpan.fortunecity.com/floyd/587/index.html The Hepatitis Information Network: http://www.hepnet.com The Canadian Liver Foundation: http://www.liver.ca "Sandi's Crusade Against Hepatitis C": http://members.rogers.com/smking/ Melissa Palmer, MD, a Hepatologist in New York: http://www.liverdisease.com/ UNOS Website (Transplant): http://www.patients.unos.org/tpd/frm_info.asp?org=LI&tab1=info CenterWatch Clinical Trials Listing Service: http://www.centerwatch.com RxList - The Internet Drug Index: http://www.rxlist.com Schering-Plough (manufacturers of Intron-a): http://www.hep-help.com Hepatitis Weekly: http://www.newsrx.com/home/main.asp?wasp=03x1mb0852g9vldbb2e7 Columbia University Diseases of the Liver: http://cpmcnet.columbia.edu/dept/gi/disliv.html Current Papers in Liver Disease: http://cpmcnet.columbia.edu/dept/gi/references.html American Association for the Study of Liver Diseases (AASLD):http://www.aasld.org American Liver Foundation (ALF) Homepage: http://www.liverfoundation.org Health Care Information Resources: http://www-hsl.mcmaster.ca/tomflem/top.html RxMed: http://www.rxmed.com/rxmed/a.home.html PovNet A great Canadian Resource site for disability and human rights issues http://www.transplant.bc.ca/links.html http://www.objectivemedicine.com http://janis7hepc.com/Your Liver Functions.htm This one tells you everything you wanted to know about the liver. www.hepcassoc.org. www.hcvanonymous.com HCV Anonymous is your source for Hepatitis C information, support and more. Members are individuals from all walks of life, relating to each other in friendship and mutual accountability. Medline Plus: http://www.nlm.nih.gov/medlineplus/hepatitisc.html Alternative Medline: http://www.nlm.nih.gov/medlineplus/alternativemedicine.html
Oh yes: and if you go to this site, http://home.pacbell.net/pwstern/quilt/,you can see the HepC quilt.
APPENDIX D – A List of Canadian Doctors Specializing in the treatment of HCV (Special thanks to Joan King of HepCBC and Eileen Caldwell-Martin of the FQHC for this)
ALBERTA
Calgary
Blustein, P. K.
415 14 St NW
Lee, Samuel
Swain, Mark
Edmonton
Bailey, Robert J.
310 11010 101
St Nw
Guttefriend, Klaus University of Alberta Phone: (780) 407 7603
Lethbridge
Koegler, David P. Family Medical Centre
2931 Av 20 S
Red Deer
Parrington, Barry (GP)
Associate
Clinic
BRITISH COLUMBIA
Dawson Creek
Lomax, Alan J. 816-103 Ave. Dawson Creek, BC V1G 2G1 Phone: (604) 782-5271
Kamloops
Picton, Taralyn 400 - 275 Landsdowne St. Kamloops, BC V2C 1X8 Phone: (250) 374-1898
Stabler, Christopher 400 - 275 Landsdowne St. Kamloops, BC V2C 6J3 Phone: (604) 372-3303
Kelowna
Borthistle, Bruce 564 Leon Avenue Kelowna, B.C., V1Y 6J6 Phone: (250) 763-6433
Render, Kenneth 564 Leon Ave. Kelowna, BC V1Y 6J6 Phone: (604) 764-6433
Maple Ridge
Spittel, Devin M. 205 11743 224th St Maple Ridge, BC V2X 7G2 Phone: (604) 467-5030
New Westminster
Kepkay, David 701 - 625 - 5 Ave. New Westminster, BC V3M 1X4 Phone: (604) 525-0155
Pullen, Brock 701 - 625 -5 Ave. New Westminster, BC V3M 1X4 Phone: (604) 526-3533
Wilson, J.W. 833 York St. New Westminster, BC V3L 4S3
North Vancouver
Hahn, Michael 204-135 East 15th St. North Vancouver, BC V7L 2P7 Phone: (604) 984-4138
Yik, Kwok 2966 Dresden Way North Vancouver, BC V7H 1P6 Phone: (604)525-0155
Zohrab, W. John 520 - 145 West 17 St. North Vancouver, BC V7M 3G4 Phone: (604) 980-5731
Penticton Maguire, Terence 12 - 477 Martin St. Penticton, BC V2A 5C2 Phone: (604) 497-1117
Prince George
Siderov, J.J. Internal Medicine - Gastroenterology/Hepatology 307 Victoria Medical Bldg 1669 Victoria Street Prince George, BC V2L 2L5 Phone: (250) 564-2182 Fax: (250) 964-6110
Richmond
Fishman, Martin Richmond Health Sci. Centre 560 - 6091 Gilbert Rd. Richmond, BC V7C 5L9 Phone: (604)723-4447
Kwan, Wing 4104 Bryson Place Richmond, BC V6X 3S5
Surrey
Donaldson, Bruce 204 - 1671 Martin St. Surrey, BC V7A 6E7 Phone: (604) 536-2188 Fax: (604) 538-6317
Doris, Peter 305 - 9656 King George Hwy. Surrey, BC V3T 2V5 Phone: (604) 583-1668 Fax: (604) 583-7180
Prest, Marcia 4, 13665 - 96 Ave. Surrey, BC V3V 1Z1 Phone: (604) 584-2033
Smith, John 302 - 9656 King George Hwy. Surrey, BC V3T 2V5 Phone: (604) 581-7007
Wong, Henry Surrey Memorial Hospital
13750 96 Ave Phone: (604) 584-6661
Vancouver
Amar, Jack N. 300-1400 Burrard St. Vancouver, BC V6Z 2A5 Phone: (604) 688-6180 Fax: (604) 687-4577
Anderson, Frank 206B - 700 West 10th Ave. Vancouver, BC V5Z 1L5 Phone: (604) 876-5122 Fax: (604) 875-4429 Conducting trials in combination therapies, maintenance dosing, PEG interferon, amantadine, induction dosing with interferon
Bogoch, Abraham 601 - 805 West Broadway Vancouver, BC V5Z 1K1 Phone: (604) 872-0717
Carr, Donald 601 - 805 West Broadway Vancouver, BC V5Z 1K1 Phone: (604) 872-0717 Fax: (604) 872-7921
Chan, Robert
1081 Burrard
St Phone: (604) 689-7200
Chaun, Hugh 601 - 805 West Broadway Vancouver, BC V5Z 1K1 Phone: (604) 872-0717 Fax: (604) 872-7921
Cleator, Iain G.M. St. Paul's Hospital 1081 Burrard St. Vancouver, BC V6Z 1Y6 Phone: (604) 631-5418 Fax: (604) 631-5281
Dobson, M B.C. Childrens Hospital
4480 Oak St Phone: (604) 875-9787
Dr. Sigfried R. Erb Room 100 2647 Willow Street Vancouver BC V5Z 3P1 Combination therapy (interferon and ribavirin)
Forward, Alan D. C-700 West 10th Ave. Vancouver, BC V5Z 4E5 Phone: (604) 876-8424
Freeman, Hugh Vancouver Hospital & Health Science Ctr (UBC) 2211 Wesbrook Mall Vancouver, BC V6T 1W5 Phone: (604) 822-7216 Fax: (604) 822-7897
Gray, James 611 - 750 West Broadway Vancouver, BC V5Z 1M9 Phone: (604) 879-1582 Fax: (604) 879-1075
Halparin, Lawrence 507-1160 Burrard St. Vancouver, BC V6Z 2E8 Phone: (604) 682-8224
Harrison, Cameron Dept. of Surgery 2211 Wesbrook Mall Vancouver, BC V6T 1W5
Hassall, Eric Div. of Gastroenterology BC Children's Hospital 4480 Oak St. Vancouver, BC V6H 3V4 Phone: (604) 875-2332 Fax: (604) 875-3244
Kwan, Peter 3793 West King Edward Ave. Vancouver, BC V6S 1M8 Phone: (604) 822-7727
MacDonald, Walter C. CCA - BC 600 West 10th Ave. Vancouver, BC V5Z 4E6 Phone: (604) 877-6000 Fax: (604) 872-4596
Mullinger-Bogoch, Marg 1549 West 35th Ave. Vancouver, BC V6M 1H1 Phone: (604) 266-5460
Phang, Paul T. St. Paul's Hospital 1081 Burrard St. Vancouver, BC V6Z 1Y6 Phone: (604) 631-5318 Fax: (604) 631-5418
Sasadeusz, Joe Viridae Clinic 1134 Burrard Street Vancouver, BC. Phone: (604) 689-9404 Fax: (604) 689-5153
Schmidt, Nis St. Paul's Hospital 1081 Burrard St. Vancouver, BC V6Z 1Y6 Phone: (604) 631-5035 Fax: (604) 631-5281
Steinbrecher, P. Urs 3793 West King Edward Ave. Vancouver, BC V6S 1M8 Phone: (604) 822-7121 Fax: (604) 822-7897
Stordy, Stanford 300 - 1144 Burrard St. Vancouver, BC V6Z 2A5 Phone: (604) 688-7017 Fax: (604) 687-4577
Wier, Rene 245-3066 Shelbourne Victoria, BC Phone: (250) 595-8811
Whittaker, J. Scott St. Paul's Hospital 1081 Burrard St. Vancouver, BC V6Z 1Y6 Phone: (604) 631-5034 Fax: (605) 631-5338
Victoria
Broome, Dr. T. Paul #307-2020 Richmond Victoria BC V8R 6R5 Phone: 595-5522
Buckley, Alan 314-1175 Cook Street Victoria, BC V8V 4Z7 Phone: (250) 383-5403 Fax: (250) 381-7820
Ghesquiere, W.G. 307-1990 Fort St Victoria, BC V8R 6V4 Phone: (250) 370-7717
Holland, Stephen 305 - 645 Fort St. Victoria, BC V8W 1G2 Phone: (250) 384-1544
Pearson, David C. 101-2020 Richmond Rd. Victoria, BC Phone: (250) 595-3544
Petrunia, Denis M. 204 - 1120 Yates Victoria, BC V8V 3M9 Phone: (250) 386-7731
Piercey, James 405 - 1990 Fort St. Victoria, BC Phone: (250) 370-9121
Raine, Robert 204 - 1120 Yates St. Victoria, BC V8V 3M9 Phone: (250) 386-7731
LABRADOR
MANITOBA
Kaita, Kelly Winnipeg Clinic Winnipeg, MB Phone: (204) 957-3271
Minuk, Gerry (Dr. Minuk is a leading expert in HCV) Rosser, Barry Liver Diseases Unit Room GB 443 Health Sciences Centre 820 Sherbrook Street Winnipeg Manitoba R3A 1R9 Phone: (204) 787-1434 Phone: (204) 774-6511 Fax:(204) 787-4826
NEW BRUNSWICK
Memiche, Reshat & Nejat
325 Vanier
Blvd See Nova Scotia- Victoria General Hospital- Halifax, Nova Scotia Williams, C. Noel Phone: (902) 473-7781 Fax: (902) 473-4406
Peltekian, Kevork Phone: (902) 473-2323 Fax: (902) 473-4406
NEWFOUNDLAND
Bursey, F.
Health
Sciences Centre
Fardy, J.M.
Health
Sciences Cent
Health Care Corporation Of St Johns General Hospital The Health Sciences Centre Direct
Gastroenterology
Higgins, A.
Timothy
Macintosh,
D.G.
Raman, R.
Reddy, S.B.
See Nova Scotia- Victoria General Hospital- Halifax, Nova Scotia Williams, C. Noel Phone: (902) 473-7781 Fax: (902) 473-4406
Peltekian, Kevork Phone: (902) 473-2323 Fax: (902) 473-4406
NOVA SCOTIA
Buchholz,
Michael
Gladstone
Medical Consultants
Peltekian, Kevork Victoria General Site Phone: (902) 473-2323 Phone: (902) 473-2898 Fax: (902) 473-4406
Tanton, Ronald T. Queen Elizabeth II Health Sciences Centre Gastroenterology 5991 Spring Garden Road
Halifax, NS
B3H 1Y6
Williams, C. Noel Phone: (902) 473-7781 Fax: (902) 473-4406
Writer, H.
NUNAVUT
ONTARIO
Barrie
Hemphill, D.J. 190 Cundles Road East Barrie, Ontario Phone: (705) 721-3344
Belleville
Lietaer, Larry Belleville, ON Phone: (613) 966-7897
Brampton
Sachedina, Bashirudin Brampton ON Phone: (905) 454-9230
Guelph
Bovell, Keith
Hamilton
Goodacre, Dr. Hamilton, ON Phone: (905) 521-6045
Witt-Sullivan, Helga Hamilton, ON Phone: (905) 528-2564
Jalali, Dr. Hamilton, ON Phone: (905) 577-4670
Huntsville
Murat, Brian Huntsville, ON Phone: (705) 789-3900
Kingston
Beck, Ivan T.
Hotel Dieu
Hospital
Depew, William T. Hotel Dieu Hospital
166 Brock St Phone: (613) 544-3310
Kitchener
Booth, Michael
18 Pine St
Mississauga
Anand, N.
Niagara Falls
Housley, Dr. Niagara Falls, ON Phone: (905) 354-3242
North York
Cohen, Lawrence North York, ON Phone: (416) 480-4725
Saibil, Fred Sunnybrook Medical Centre North York, ON Phone: (416)480-4727
Oshawa
Davies R.S.
117 King St E
Dr. Michael Oravec 372 King Street West Oshawa Ontario, L1J 2J9 Phone (905) 721-1221 Fax (905)721-8564
Ottawa
Farazli
Christine
Scully, Linda Ottawa Civic Hospital Phone: (613) 761-4830
Owen Sound
Kaal, Nuri Grey Bruce Health Services 1800 8th Street East, P.O. Box 1800 Owen Sound, ON N4K 6M9 Phone: (519) 371-7474 FAX: (519) 371-8585
Peterborough
Brien, S. R. 327 Charlotte Street Peterborough, ON Phone: (705) 743-2040 Phone: (705) 740-6851
St Catharines
Miller & Romatowski St. Catharines, ON Phone: (905) 682-8693
Scarborough
Devlin, Timothy Scarborough Grace General Hospital Phone: (416) 298-2922
Lin, Edward Scarborough, ON Phone: (416) 292-6509
Hurowitz, Eric Scarborough Grace General Hospital Phone: (416) 298-2922
Streetsville
Anand, N.
2000 Credit
Valley Rd Phone: (905) 607-9848
Sudbury
Agnew, S
McKaigney, J.P. Sudbury, ON Phone: (705) 671-9368
Toronto
Anderson, Joseph St Joseph's Hospital Phone: (416) 766-3301
Bignell, D.C.
955 Queen St
E
Blendis, Laurence Toronto Hospital 621 University Ave Toronto, ON M5G 2C4 Phone: (416) 340-3834
Elkashab, Magdy 1664 Dufferin St Toronto, Ontario, M6h 3M1 Phone: (416) 652-6101 Fax: (416) 652-1994
Feinman, S. Victor
187 St Clair
W (clinic director and a leading expert in HCV): Specialist in: Internal Medicine, Gastroenterology & Hepatology - treating patients with hepatitis since 1965
Gould, Michael Women's College Hospital Phone: (416) 323-6512
Greig, Paul Toronto Hospital 621 University Ave Toronto, ON M5G 2C4 Phone: 416-340-4252 Phone: (416) 340-3492
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