HCV and Pregnancy

 

How to start a Local Support Group   http://www.scn.org/health/hepatitis/handbook.htm

Awareness Pins

 http://www.hepcesn.net/ 

 

Learning about Hepatitis

Janis and Friends  Hepatitis C Support Website

Please stay awhile and visit our Web Site
Then click on our globe to enter our Support Forum
To read or participate on the Message Boards and Chat Room
With daily updated information about ourselves and  Hepatitis C

http://janis7hepc.com

Our Chat room

http://janis7hepc.com/our_chat_room_and_message_boards.htm

 

American Liver Society

The American Liver Society was founded by caregivers and patients to help other caregivers and patients and those that may become affected by a liver disease by providing them with useful information on topics of the liver.

http://www.liversociety.org/index.html

 

Hepatitis C Association 

This site is so informative one of my favorites. Also Susie is a such a sweet person. She was so kind when I emailed her about our site.  

http://www.hepcassoc.org/

 

A site for the latest news and information on co-infection (HIV and Hepatitis)

Our Favorite Site

http://www.hivandhepatitis.com

 

Information on Sexual transmission of HCV
 

Janis and Friends

Modes Of Transmission

SEX and HCV

 

HCV INFO

Janis first told me about Karen's site. It is such a warm place to visit. Filled with some great information.

                                         Http://www.hcvinfo.com                                                      

Poetry website~
http://www.geocities.com/karenspoetry

Webheppers  A site to find other sites on Hepatitis

f http://webheppers.hcvinfo.com/

 

Hepatitis Out Reach Project 

We Can Help We can help persons affected by the disease of Hepatitis C adjust to the diagnosis, treatment and life with HCV. Persons, whether newly diagnosed or not, and their loved ones, may need support with issues of living with chronic illness and dealing with HCV. We offer support and information through emails, internet connections, telephone conversations, and written correspondence with knowledgeable, caring volunteer mentors

http://www.hcop.org/

An independent community-based organization providing information, support and advocacy to people affected by hepatitis C in the state of NSW, Australia.

http://www.hepatitisc.org.au/

 

Hepatitis C Aware

A site for raising awareness, education and support for and by those infected with the Hepatitis C virus. This is a community site and participation is encouraged. Articles, anecdotes, personal stories and information from anyone infected or those close to an infected individual are welcome.
This is YOUR SITE!
 

http://www.hepatitiscaware.org

Hepcaware

(Sally's Hep c Support Site) As soon as you visit this site you will feel at home. You can read Sally's success story, while learning all about Hepatitis. Also see our support group pages for her support group in Virginia. She gives 100 percent towards supporting others.

http://www.hepcaware.com

Elaine's Hepatitis C Resource Page

Resource page for anyone wanting to know more about the Hepatitis C virus. Elaine has been a dedicated supporter for years. Her site was one of the first I visited when I learned I had Hep. She was also so kind when I emailed her about our site. A wonderful person, with a very well done Site.
 

http://www.hepcprimer.com

FAQ's about Hepatitis C from Peppermint Patti's Page
Most comprehensive list of Frequently Asked Questions about Hepatitis C that I have seen
http://members.bellatlantic.net/~clotho/cfaq.htm

Healing Well.Com

This is a new site for me. I found it a great site to learn from. 

http://www.healingwell.com/hepatitis/

 

(Formally) Hepatitis C Research Foundation

 HRF

Welcome to the Hepatitis Research Foundation's (HRF) web site. The Foundation plans to raise funds to support research into the treatment of chronic hepatitis C (HCV) and hepatitis B (HBV) infections by immunotherapy, and development of a vaccine for HCV.

      http://www.heprf.org

National Hepatitis C Coalition, Inc  

We are advocates for increased awareness and recognition of the seriousness of hepatitis C, and our purpose is to help others learn how to live with it, while we all fight for stepped up research to find effective treatments, cures and vaccines.
 

http://nationalhepatitis-c.org

 

Health Care Information Resources 

This is a great place to find other resources for HCV sites. Also some great information about our disease.

http://hsl.mcmaster.ca/tomflem/hepat.html

 

Dragon Slayers Fighting Hepatitis C

This Website has been designed with the intention of presenting the most basic facts, risks, and symptoms, and direct you to the latest medical news and clinical information on this disease. There are also many web links to other related sources on the Web.
 

http://www.dragon-slayers.org/

Hepatitis C Education & Support Network

 This site is ran by friends of Janis.  They give so much to all of us who suffer from Hep. Linda Bird's links are on our second page of links (thank you so much) She has used some of our links also. Working together is what makes for a great support foundation for all of us.  This site has so much great information on it, we hope you enjoy it as much as we do.

http://hepcesn.net/index.html

 

Hepatitis C Virus Fact Sheet
Hepatitis C is a viral infection of the liver. There other types of viral hepatitis including Hepatitis A (formerly called infectious hepatitis), Hepatitis B (formerly called serum hepatitis), Hepatitis D, and Hepatitis E. Hepatitis A, Hepatitis B, and Hepatitis C are the most common forms found in the U.S.
http://www.hhs.state.ne.us/epi/epihep_c.htm


Mayo Clinic - Hepatitis C
Article explains what hepatitis C is, discusses the acute and chronic elements of the condition, and gives advice on who is at risk.
http://www.mayohealth.org/home?id=5.1.1.8.9

NIDDK - What Do I Need To Know About Hepatitis C?
Overview of hepatitis C presented in an easy to understand format. From the National Institute of Diabetes and Digestive and Kidney Diseases.
http://www.niddk.nih.gov/health/digest/pubs/hep/hepc/hepc.htm
 

HEP C HOLLOW

A great new personal site to visit

http://home.sc.rr.com/fantazmink/HepCHollow/

InteliHealth - Hepatitis C - The Silent Epidemic
Discusses the most common ways that the hepatitis C virus is transmitted and provides an overview of the disease.
http://www.intelihealth.com/IH/ihtIH?d=dmtContent&c=194753&p=~b

You know you are sick, but no one can put a name to your illness. You go from doctor to doctor, seeking a diagnosis. You have lost track of the medical tests that have failed to give an answer. People tell you, "It's all in your head." Your medical insurance refuses to pay the bills. You feel all the worse because no one believes that something is really wrong.... Terra Zyporin, "Nameless Diseases
http://www.askemilyss.com/

 

GENERAL MEDICAL INFORMATION And  NEWS SITES

The American Board of Medical Specialties' (ABMS) web site has a public education program, physician locator, and information service. The board certification status, location by city and state, and specialty of any physician certified by one or more of 24 member boards of the ABMS can be checked through this Web site. This service is free to consumers, but physicians have "…subscribed to be listed in this service."

http://www.certifieddoctor.org

HCV Advocate ( Our Favorite Site)

A very comprehensive web site for HCV and HIV/HCV coinfection that contains the HCV Advocate newsletter (in PDF), educational materials in English and Spanish, information on support groups, clinical trials as well as regularly updated news items on HCV. A new feature - The Medical Writers' Circle features articles written by the most respected and knowledgeable physicians in the field of liver disease today.

http://www.hcvadvocate.org

The web site for New England Journal of Medicine provides access to the Medline database from which you can search for and order articles on hepatitis C.

http://www.nejm.org/
 

Content is evaluated by faculty at Case Western Reserve University, Ohio State University and the University of Cincinnati.

http://www.netwellness.com/
 

This is the web site of the United Network for Organ Sharing whose mission is to advance organ availability and transplantation.

http://www.unos.org/
 

This is a comprehensive on-line resource committed to providing general health information and support.

http://www.webmd.com/
 

Wellmed is an online, personal health management service. Their services allow individuals to receive the accurate, personalized health information they need to maintain and improve their health. Tailored to the individual needs of each user, the health information that WellMed delivers can also help people communicate their health care requirements more effectively to employers, health plan and care providers.

http://www.wellmed.com/wellmed

Get Involved

(these sites are very informative)

Dr. Richard Darling, a California dentist, founded ProrateNIH after suffering from hepatitis C, diabetes, cirrhosis and cancer of the liver, coma, heart attack, hepatorenal syndrome, myasthenia gravis and three liver transplant operations.

This site and his book, ComaLife, detail how the unfairness in the distribution of funds directly affects the sixteen diseases (The 16) that kill more people in the United States than AIDS. His chapter that addresses the shocking inequities in research spending by the NIH is titled “What The Hell Is Going On Here!?”

Born and raised in Barre, Vermont, Dr. Darling, 55, was educated at Syracuse University, the University of Denver, and graduated from the University of the Pacific Dental School, San Francisco. As a member of the Board of Directors of the United Organ Transplant Association, he gives speeches promoting organ donation and clarifies the facts versus the myths regarding the “Gift of Life.” Dr. Darling strives to uplift the spirits of the patients in the Coachella Valley Hepatitis C, Liver Disease & Transplant Support Group that he founded.

(Please read  his  interview on our Personal Interviews & Articles page)

ProrateNIH was formed because of the outrageous inequities in research spending by the National Institutes of Health (NIH) that favor AIDS over the sixteen diseases killing more Americans than AIDS. This site will demonstrate the need to reform the public policies used to determine funding distributions by the National Institutes of Heath.

http://proratenih.com/

 

Hep C Education and Support Network *
PO Box 1231
Locust Grove, VA. 22508
504-972-2856 Their mission is to educate the public and promote awareness through events, programs and the distribution of awareness pins. Providing support to patients living with hepatitis C with online support, educational brochures and posters in addition to a toll free support line. Working with methadone service providers to educate patients and staff on hepatitis C risks and management. Think Global, Act Local.
Web site: http://www.hepcesn.net/
 

Hepatitis C Association
1351 Cooper Road
Scotch Plains, NJ 07076 The Hepatitis C Association focuses on educating the public, creating awareness, promoting organ donation and offering support to hepatitis patients. We do this through our publications, our website, our 24 hr toll-free support line, our awareness pins and our educational programs.
Website: www.hepcassoc.org
 

Hepatitis C Awareness Project *
PO Box 41803
Eugene, OR 97404-0520
(541) 607-5725 The Hepatitis C Awareness Project is an Oregon grassroots organization designed to increase the awareness of viral hepatitis and to help educate the community about HCV prevention, diagnosis and treatment. They are active with prison outreach and needle exchange. They produce a monthly newsletter for the state legislature and support group members.
Email: hepcaware@aol.com
 

Yahoo is a great place to get the latest News . 

We use their site to update our latest news section. Also you will find some great Web Pages to visit.

http://dailynews.yahoo.com/fc/Health/Hepatitis

Hepatitis C Caring Ambassadors Program *
PO Box 1748
Oregon City, OR 97045
503-632-9032
Fax: 503-632-9031 The Hepatitis C Caring Ambassadors Program is a privately funded organization that was founded by a person with hepatitis C in search of treatment options. The Hepatitis C Caring Ambassadors Program has no drugs or products to sell and no therapies or clinics to promote. The only philosophy it promotes is that it is vitally important for people with hepatitis C to equip themselves with all the facts and information about the illness and about the various treatment options available to them
Web site: http://www.hepcchallenge.org/
 

Hepatitis Magazine *
523 N. Sam Houston Parkway, East
Suite 300
Houston, TX 77060
281-272-2744 Ext. 132
Fax: 281-847-5440 Hepatitis Magazine is the only national magazine dedicated to people with hepatitis B and C. The magazine is a bimonthly resource guide to assist hepatitis patients and their families in taking control of their healthcare by providing current, comprehensive information in one source.
Web site: http://www.hepatitismag.com/
 

National Hepatitis C Advocacy Council
P. O. Box 1748
Oregon City, OR 97045
503-632-9032
877-737-4372
Fax: 503-632-9031
Web site: http://www.hepcnetwork.org/
The organizations listed below with an asterisk (*) are members of the National Hepatitis C Advocacy Council. The National Hepatitis C Advocacy Council is an association of organizations that creates a unified voice, promotes ethical guidelines, and improves quality of services for people affected by hepatitis C. Through this one website address you can reach all member websites.

Frontline Hepatitis *
206-324-0873
Fax: 775-542-5143
Email: hepbegone@Iwon.com
Web site: http://www.frontline-hepatitis-awareness.com
The Frontline Hepatitis Awareness was founded in May 2000 on the Internet to provide people with information about hepatitis; to bring together hepatitis support groups, patients and organizations to work towards this common goal; and to offer services that otherwise might not be available in each state and give referrals to those that are in place.

 

Hep C Advocate Network *
P.O. Box 3003
Longview, TX 75606
903-291-9700
Email: hepcan1@aol.com
Web Site: http://www.hepcan.org
HepCAN is devoted to legislation changes for more testing and treatment of HCV infected individuals on the state and national level as well as increasing professional education about the disease.

Hep-C Alert *
660 Northeast 125th Street
North Miami, FL 33161
877-HELP-4-HEP
Fax: 305.893.7998
Web site: http://www.hep-c-alert.org
Hep C Alert is an educational nonprofit organization whose mission is to raise public awareness and assist people affected by hepatitis C.

Hep C Connection *
1177 Grant Street
Suite 200
Denver, CO 80203
303-860-0800
800-522-4372
Fax: 303-860-7481
Web site: http://www.hepc-connection.org/
The Hep C Connection provides the Hepatitis C Network and Support System to assist hep C-challenged individuals and their families.

Hep C Education and Support Network *
PO Box 1231
Locust Grove, VA. 22508
504-972-2856
Web site: http://www.hepcesn.net/
Their mission is to educate the public and promote awareness through events, programs and the distribution of awareness pins. Providing support to patients living with hepatitis C with online support, educational brochures and posters in addition to a toll free support line. Working with methadone service providers to educate patients and staff on hepatitis C risks and management. Think Global, Act Local.

 

Search Engines , News Sites and Medical Sites

A Site to Search for Anything
http://www.refdesk.com/

 

Doctor's Guide to Medical News
http://www.pslgroup.com/dg/bef56.htm

The following websites have been chosen for their in-depth coverage of medicine online and ease of use. Because most of the sites listed are gateways to thousands of other medical web pages, book marking just one of them should ensure that you are kept informed and up-to-date.
Medical databases and index sites

BioMedNet http://biomednet.com/

Hepatitis Weekly
This site has weekly information about the latest hepatitis news, research from conferences, and journal article summaries. Abstracts of all stories are available on-line, but a paid subscription is required to access the full stories.
www.NewsRx.net

Hot Sites - Medical - News
http://www.jr.co.il/hotsites/med-news.htm

Yahoo Breaking News on Hepatitis
http://search.news.yahoo.com/search/news?p=hepatitis&n=10

HCV Advocate

http://groups.yahoo.com/group/HepCNews/messages

HepNet - The Hepatitis Information Network
A Canadian site from HepNet providing information on hepatitis and also includes news items, current events, a quiz, and a search engine.
http://www.hepnet.com/

This web site provides access to the official journal of the American Association for the Study of Liver Diseases.

http://www.hepatology.org/

MedWebPlus: Free service designed to help users sift through the ever growing amounts of data of/on/about or in any way regarding, the health sciences on the Internet.
http://www.medwebplus.com/

Johns Hopkins Medical Institutions' news releases are available on an EMBARGOED basis on Newswise  at
http://www.newswise.com/ and from the Office of Communications and Public Affairs' direct e-mail news release service. To enroll, call 410-955-4288 or send e-mail to bsimpkins@jhmi.edu.
On a POST-EMBARGOED basis find them at http://hopkins.med.jhu.edu./

Janis and Friends Hepatitis C News http://janis7hepc.com/Hep%20C%20News.htm

Reuter's Health News: http://www.reutershealth.com/

The American Medical Association (AMA) web site has a consumer health section that includes links to: general health issues, specific conditions, your body, your family's health, Kids Health Club, Doctor Finder, Hospital Finder, Medical Group Practice Finder. The nutrition section has information on such things as vitamins and fitness. It also has a medical glossary. There is a link to recipes with new recipes posted every two weeks. This link also has information on health-oriented cookbooks and nutritional resources.

http://www.ama-assn.org/

The Lancet is a peer-reviewed medical journal.

http://www.thelancet.com/

The British Medical Journal is a free publication with up-to-date information about hepatitis C.

http://www.bmj.com/

 

Support Sites, Personal Sites,  Message Boards and Chat rooms


Janis and Friends Hepatitis Support Web Site ( Our site with message boards and chat room)
http://forums.delphiforums.com/friendship7/start 

Liver Failure Support Group

a wonderful support forum, with so much information this is ran by our friend (Imkindly) We have her wonderful interview on our Website.

http://forums.delphiforums.com/liverfailure/start

Madman's Web

This web site is dedicated to getting factual information out there about this disease and how it affects the life and relationships of it's victims, from my point of view. 

http://www.madmansweb.com/hepatitis.htm

Miles Keaton Andrew

Diary of Treatment: Pegasys, Ribavirin, Zadaxin

http://www.mkandrew.com/hope.htm

HEP C HOLLOW

A great new personal site to visit

http://home.sc.rr.com/fantazmink/HepCHollow/

 

Dragon Slayers Fighting Hepatitis C

( This is a Brand NEW web site, go take a look ! )

This Website has been designed with the intention of presenting the most basic facts, risks, and symptoms, and direct you to the latest medical news and clinical information on this disease. There are also many web links to other related sources on the Web.
 

http://www.dragon-slayers.org/

 

Hepatitis C Education Support Network
A site dedicated to the education and support of people who live with HVC and the education of the public at large.
http://hepcesn.net/


Hepatitis C and Emotional Healing ( Friend Neelie's Site) This site is ran by the most caring and giving people.

http://forums.delphiforums.com/depressionhepc/start 
 

Hepatitis Hope

( Our friend Bette's site) Bette spends many hours supporting all of us who are on treatment. And all others at her site.

http://forums.delphiforums.com/hopenow1/start

 

Hep Randi Support  For Hepatitis 

A site ran by a wonderful woman. We have her interview on our web site. She has supported so many people over the years, with open arms and compassion. Please visit her site !

http://groups.yahoo.com/group/HepRandiSupportForHepatitis/

Seekersite ( Where Janis and many of us first found support) Hi Splash !! http://forums.delphiforums.com/hepc/start  
 

Hepatitis C & Nutritional Health 

This site is ran by one of are very own. Please also see her nutrition pages on our site. She works so hard, for so many.

http://forums.delphiforums.com/hepcandherbs/start

 

The Café. The Café provides hepatitis chat rooms and message boards on a variety
of topics that you may face. Hepatitis topics range from just diagnosed to ...
http://www.hepatitisneighborhood.com/preview_cafe.htm

More Results From: www.hepatitisneighborhood.com

Chats for Hepatitis
... scheduled chats dealing with Hepatitis in the **HCV Chat Room**and a newsletter you
can sign up for. . To get there, simply click on "Chat Rooms" in the upper ...
http://members.aol.com/ladyelec/chatsfor.htm

HCV (HEPATITIS) E-MAIL AND ONLINE GROUP SUPPORT FOR HEPATITIS
... everyone who wishes to receive mailings about current chat rooms & support groups;
breaking news, hepatitis related updates and our Newsletter "News You Can Use ...
http://members.aol.com/CThomp1803/myhomepage/

Hepatitis Foundation International

http://www.hepfi.org

Counselors can be reached by calling our toll-free number,
800-891-0707, or
973-239-1035.

Hepatitis Out Reach Project  We Can Help We can help persons affected by the disease of Hepatitis C adjust to the diagnosis, treatment and life with HCV. http://www.hcop.org/mentor.htm

The HEPC Chat Channel (open 24 hours) at
http://www.ariess.com/chat/

where:
a) you will have to log in with your name
before seeing any activity);
b) if you cannot log in, the maximum number
of participants has been reached.
Try again later.


THE LAND OF WAZ HEPATITIS C & CFIDS INFO
 

http://www.asan.com/users/wazzie/wizpage2.htm

 

My AVATAR CHAT ROOM .
I'm Open 9AM til 10 or11PM EST

Cindy's Hepatitis C Home  -

links and my personal story + my own chat room for hepatitis support.
http://members.aol.com/timez18008/hepc.html 
More sites about:  Hepatitis C > Personal Experience

 

Hepatitis Neighborhood  -

resource for people with the Hepatitis C, B, and A viruses. Offers medical articles, drug development updates, nutritional advice, newsletter, and chat.
http://www.hepatitisneighborhood.com/ 

The Garden

( A mix of support for all, our friend Windchimes site) This site is fun, while still being very informative.  

http://forums.delphiforums.com/windchimes2/start

 

Car's Lilly-Livered Page  -

provides a ICQ chat list, message board, and links related to hepatitis.
http://www.hep-c.net/ 
More sites about: 

NHCC International Hep Forum Web Chatroom
The National Hepatitis C Coalition's International Hep Forum
HEPATITIS CHATROOM ALWAYS OPEN FOR HEPATITIS CHATS. ...
http://nationalhepatitis-c.org/hepboards/forum/ 
 

Hepatitis Central, Online Hepatitis Support Group Chats
Hepatitis Central TM. On Line Hepatitis Support Chats. VETS WITH HEP C. If you
are a veteran with HCV please join others like yourself here to share. ...
http://hepatitis-central.com/hcv/support/online/toc.html 
 

The Tender Heart A beautifully done site

 http://forums.delphiforums.com/poetparadise/start

Links to HCV Single Sites

You can leave your profile there
http://gmwebs.net/schepc/

Singles email addys
http://nationalhepatitis-c.org/singles/list.htm

AOL only) e-mail Misbiz@aol.com for info Hep C Singles ...
http://hometown.aol.com/Ladyelec/chatsfor.htm

Pam Langford's Hep C Links page

http://www.diac.com/~ekwall2/chat/

www.diac.com/~ekwall2/hepchat/links.shtml

Hepsingles match~making and dating site for singles with HEPATITIS-C flirting strongly encouraged.......there are many HCV support groups out there, but NO DATING SITES.....we want to SEE COUPLES, NOT SINGLES

http://groups.yahoo.com/group/hepsingles-1/

HCV Anonymous singles group
http://www.hcvanonymous.com/singles.html

Singles Mingle.
http://groups.yahoo.com/group/HepCingles
HepCingles@yahoogroups.com

HepC-SingleChristains · This group is for single Christains that are seeking friendships that are meaningful and lasting. Share spiritual experiences.

http://groups.yahoo.com/group/HepC-SingleChristains/

FOR SINGLE HEPPERS ~ A venue for singles . Message boards
http://www.voy.com/16876/
 

Single Heppers Chat Room
http://www.hepchotel.com/singleschat/chat.html

Ontario HepCsingles - Find that special person
http://groups.yahoo.com/group/ontariohepcsingles/

 

www.ssa.gov/pubs/10068.html

SSD's CFS Fact Sheet 

www.ssa.gov/odhome/cfsfacts.htm

Toll Free Numbers To Agencies 

http://macdds.org/m_toll.htm

When we emailed Mike to ask him if we could use his information. He was more then happy to share it will all. This is only a example of all the great people out there helping those with Hepatitis. Thank you so much Mike, you are one in a million. Please visit Mikes site  http://heppie2000.tripod.com/index-3.html

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