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How to start a
Local Support Group
http://www.scn.org/health/hepatitis/handbook.htm
Awareness Pins
http://www.hepcesn.net/
Learning about Hepatitis
Janis and Friends
Hepatitis C Support Website
Please stay awhile and visit our Web Site
Then click on our globe to enter our Support Forum
To read or participate on the Message Boards and Chat Room
With daily updated information about ourselves and Hepatitis C
http://janis7hepc.com
Our Chat room
http://janis7hepc.com/our_chat_room_and_message_boards.htm
American Liver Society
The American Liver
Society was founded by caregivers and patients to help other
caregivers and patients and those that may become affected by a liver
disease by providing them with useful information on topics of the
liver.
http://www.liversociety.org/index.html
Hepatitis C Association
This site is so informative one
of my favorites. Also Susie is a such a sweet person. She was so kind when I
emailed her about our site.
http://www.hepcassoc.org/
A site for the latest
news and information on co-infection (HIV and Hepatitis)
Our Favorite Site
http://www.hivandhepatitis.com
Information on
Sexual transmission of HCV
Janis and
Friends
Modes Of Transmission
SEX and HCV
HCV INFO
Janis first told me about Karen's
site. It is such a warm place to visit. Filled with some great information.
Http://www.hcvinfo.com
Poetry website~
http://www.geocities.com/karenspoetry
Webheppers A site to find other sites on
Hepatitis
f
http://webheppers.hcvinfo.com/
Hepatitis Out Reach Project
We Can Help We can help persons
affected by the disease of Hepatitis C adjust to the diagnosis, treatment
and life with HCV. Persons, whether newly diagnosed or not, and their loved
ones, may need support with issues of living with chronic illness and
dealing with HCV. We offer support and information through emails, internet
connections, telephone conversations, and written correspondence with
knowledgeable, caring volunteer mentors
http://www.hcop.org/
An
independent community-based organization providing
information, support and advocacy to people affected by
hepatitis C in the state of NSW, Australia.
http://www.hepatitisc.org.au/
Hepatitis C Aware
A site for raising awareness, education
and support for and by those infected with the Hepatitis C virus. This
is a community site and participation is encouraged. Articles,
anecdotes, personal stories and information from anyone infected or
those close to an infected individual are welcome.
This is YOUR SITE!
http://www.hepatitiscaware.org
Hepcaware
(Sally's Hep c Support Site) As soon as you visit
this site you will feel at home. You can read Sally's success story, while
learning all about Hepatitis. Also see our
support group pages for her support group
in Virginia. She gives 100 percent towards supporting others.
http://www.hepcaware.com
Elaine's Hepatitis C Resource Page
Resource page for anyone wanting to know more about the Hepatitis C
virus. Elaine has been a dedicated supporter for years. Her site was
one of the first I visited when I learned I had Hep. She was also so
kind when I emailed her about our site. A wonderful person, with a
very well done Site.
http://www.hepcprimer.com FAQ's about Hepatitis C
from Peppermint Patti's Page
Most comprehensive list of Frequently Asked Questions about
Hepatitis C that I have seen
http://members.bellatlantic.net/~clotho/cfaq.htm
Healing Well.Com
This is a new site for me. I found it a great site to learn from.
http://www.healingwell.com/hepatitis/
(Formally) Hepatitis C Research
Foundation
HRF
Welcome to the
Hepatitis Research Foundation's (HRF) web site. The Foundation
plans to raise funds to support research into the treatment of
chronic hepatitis C (HCV) and hepatitis B (HBV) infections by
immunotherapy, and development of a vaccine for HCV.
http://www.heprf.org
National Hepatitis C Coalition, Inc
We are advocates for increased awareness
and recognition of the seriousness of hepatitis C, and our purpose
is to help others learn how to live with it, while we all fight
for stepped up research to find effective treatments, cures and
vaccines.
http://nationalhepatitis-c.org
Health Care Information Resources
This is a great place to find
other resources for HCV sites. Also some great information about our
disease.
http://hsl.mcmaster.ca/tomflem/hepat.html
Dragon Slayers Fighting Hepatitis C
This
Website has been designed with the intention of presenting the most basic
facts, risks, and symptoms, and direct you to the latest medical news and
clinical information on this disease. There are also many web links to other
related sources on the Web.
http://www.dragon-slayers.org/
Hepatitis C Education & Support
Network This
site is ran by friends of Janis. They give so much to all of
us who suffer from Hep. Linda Bird's links are on our second page
of links (thank you so much) She has used some of our links also.
Working together is what makes for a great support foundation for
all of us. This site has so much great information on it, we
hope you enjoy it as much as we do.
http://hepcesn.net/index.html
Hepatitis C Virus Fact
Sheet
Hepatitis C is a viral infection of the liver. There other types
of viral hepatitis including Hepatitis A (formerly called
infectious hepatitis), Hepatitis B (formerly called serum
hepatitis), Hepatitis D, and Hepatitis E. Hepatitis A, Hepatitis
B, and Hepatitis C are the most common forms found in the U.S.
http://www.hhs.state.ne.us/epi/epihep_c.htm
Mayo Clinic - Hepatitis C
Article explains what hepatitis C is, discusses the acute and
chronic elements of the condition, and gives advice on who is at
risk.
http://www.mayohealth.org/home?id=5.1.1.8.9
NIDDK - What Do I Need To Know About Hepatitis C?
Overview of hepatitis C presented in an easy to understand format.
From the National Institute of Diabetes and Digestive and Kidney
Diseases.
http://www.niddk.nih.gov/health/digest/pubs/hep/hepc/hepc.htm
HEP C HOLLOW
A great
new personal site to visit
http://home.sc.rr.com/fantazmink/HepCHollow/
InteliHealth - Hepatitis C - The Silent Epidemic
Discusses the most common ways that the hepatitis C virus is
transmitted and provides an overview of the disease.
http://www.intelihealth.com/IH/ihtIH?d=dmtContent&c=194753&p=~b
You know you are sick,
but no one can put a name to your illness. You go from doctor to
doctor, seeking a diagnosis. You have lost track of the medical
tests that have failed to give an answer. People tell you, "It's
all in your head." Your medical insurance refuses to pay the
bills. You feel all the worse because no one believes that
something is really wrong.... Terra Zyporin, "Nameless Diseases
http://www.askemilyss.com/
GENERAL MEDICAL INFORMATION And
NEWS SITES
The American Board of Medical Specialties' (ABMS) web site has a
public education program, physician locator, and information
service. The board certification status, location by city and
state, and specialty of any physician certified by one or more of
24 member boards of the ABMS can be checked through this Web site.
This service is free to consumers, but physicians have
"…subscribed to be listed in this service."
http://www.certifieddoctor.org
HCV Advocate ( Our Favorite Site)
A very comprehensive web site for HCV and HIV/HCV coinfection that
contains the HCV Advocate newsletter (in PDF), educational
materials in English and Spanish, information on support groups,
clinical trials as well as regularly updated news items on HCV. A
new feature - The Medical Writers' Circle features articles
written by the most respected and knowledgeable physicians in the
field of liver disease today.
http://www.hcvadvocate.org
The web site for New
England Journal of Medicine provides access to the Medline
database from which you can search for and order articles on
hepatitis C.
http://www.nejm.org/
Content is evaluated by
faculty at Case Western Reserve University, Ohio State University
and the University of Cincinnati.
http://www.netwellness.com/
This is the web site of
the United Network for Organ Sharing whose mission is to advance
organ availability and transplantation.
http://www.unos.org/
This is a comprehensive
on-line resource committed to providing general health information
and support.
http://www.webmd.com/
Wellmed is an online,
personal health management service. Their services allow
individuals to receive the accurate, personalized health
information they need to maintain and improve their health.
Tailored to the individual needs of each user, the health
information that WellMed delivers can also help people communicate
their health care requirements more effectively to employers,
health plan and care providers.
http://www.wellmed.com/wellmed
Get Involved
(these sites are very
informative)
Dr. Richard Darling, a California
dentist, founded ProrateNIH after suffering from hepatitis C,
diabetes, cirrhosis and cancer of the liver, coma, heart attack,
hepatorenal syndrome, myasthenia gravis and three liver transplant
operations.
This site and his book,
ComaLife,
detail how the unfairness in the distribution of funds directly
affects the sixteen diseases (The 16) that kill more people in the
United States than AIDS. His chapter that addresses the shocking
inequities in research spending by the NIH is titled “What
The Hell Is Going On Here!?”
Born and raised in Barre, Vermont, Dr.
Darling, 55, was educated at Syracuse University, the University
of Denver, and graduated from the University of the Pacific Dental
School, San Francisco. As a member of the Board of Directors of
the United Organ Transplant Association, he gives speeches
promoting organ donation and clarifies the facts versus the myths
regarding the “Gift of Life.” Dr. Darling strives to uplift the
spirits of the patients in the Coachella Valley Hepatitis C, Liver
Disease & Transplant
Support Group
that he founded.
(Please read his
interview on our
Personal Interviews & Articles
page)
ProrateNIH
was formed because of the outrageous inequities in research
spending by the National Institutes of Health (NIH) that favor
AIDS over the sixteen diseases killing more Americans than AIDS.
This site will demonstrate the need to reform the public policies
used to determine funding distributions by the National Institutes
of Heath.
http://proratenih.com/
Hep C Education and
Support Network *
PO Box 1231
Locust Grove, VA. 22508
504-972-2856 Their mission is to educate the public and promote
awareness through events, programs and the distribution of
awareness pins. Providing support to patients living with
hepatitis C with online support, educational brochures and posters
in addition to a toll free support line. Working with methadone
service providers to educate patients and staff on hepatitis C
risks and management. Think Global, Act Local.
Web site:
http://www.hepcesn.net/
Hepatitis C Association
1351 Cooper Road
Scotch Plains, NJ 07076 The Hepatitis C Association focuses on
educating the public, creating awareness, promoting organ donation
and offering support to hepatitis patients. We do this through our
publications, our website, our 24 hr toll-free support line, our
awareness pins and our educational programs.
Website:
www.hepcassoc.org
Hepatitis C Awareness
Project *
PO Box 41803
Eugene, OR 97404-0520
(541) 607-5725 The Hepatitis C Awareness Project is an Oregon
grassroots organization designed to increase the awareness of
viral hepatitis and to help educate the community about HCV
prevention, diagnosis and treatment. They are active with prison
outreach and needle exchange. They produce a monthly newsletter
for the state legislature and support group members.
Email:
hepcaware@aol.com
Yahoo is a great place
to get the latest News .
We use their site to update our latest news section. Also you will
find some great Web Pages to visit.
http://dailynews.yahoo.com/fc/Health/Hepatitis
Hepatitis C Caring
Ambassadors Program *
PO Box 1748
Oregon City, OR 97045
503-632-9032
Fax: 503-632-9031 The Hepatitis C Caring Ambassadors Program is a
privately funded organization that was founded by a person with
hepatitis C in search of treatment options. The Hepatitis C Caring
Ambassadors Program has no drugs or products to sell and no
therapies or clinics to promote. The only philosophy it promotes
is that it is vitally important for people with hepatitis C to
equip themselves with all the facts and information about the
illness and about the various treatment options available to them
Web site:
http://www.hepcchallenge.org/
Hepatitis Magazine *
523 N. Sam Houston Parkway, East
Suite 300
Houston, TX 77060
281-272-2744 Ext. 132
Fax: 281-847-5440 Hepatitis Magazine is the only national magazine
dedicated to people with hepatitis B and C. The magazine is a
bimonthly resource guide to assist hepatitis patients and their
families in taking control of their healthcare by providing
current, comprehensive information in one source.
Web site:
http://www.hepatitismag.com/
National Hepatitis C
Advocacy Council
P. O. Box 1748
Oregon City, OR 97045
503-632-9032
877-737-4372
Fax: 503-632-9031
Web site:
http://www.hepcnetwork.org/
The organizations listed below with an asterisk (*) are members of
the National Hepatitis C Advocacy Council. The National Hepatitis
C Advocacy Council is an association of organizations that creates
a unified voice, promotes ethical guidelines, and improves quality
of services for people affected by hepatitis C. Through this one
website address you can reach all member websites.
Frontline Hepatitis *
206-324-0873
Fax: 775-542-5143
Email:
hepbegone@Iwon.com
Web site:
http://www.frontline-hepatitis-awareness.com
The Frontline Hepatitis Awareness was founded in May 2000 on the
Internet to provide people with information about hepatitis; to
bring together hepatitis support groups, patients and
organizations to work towards this common goal; and to offer
services that otherwise might not be available in each state and
give referrals to those that are in place.
Hep C Advocate Network
*
P.O. Box 3003
Longview, TX 75606
903-291-9700
Email:
hepcan1@aol.com
Web Site:
http://www.hepcan.org
HepCAN is devoted to legislation changes for more testing and
treatment of HCV infected individuals on the state and national
level as well as increasing professional education about the
disease.
Hep-C Alert *
660 Northeast 125th Street
North Miami, FL 33161
877-HELP-4-HEP
Fax: 305.893.7998
Web site:
http://www.hep-c-alert.org
Hep C Alert is an educational nonprofit organization whose mission
is to raise public awareness and assist people affected by
hepatitis C.
Hep C Connection *
1177 Grant Street
Suite 200
Denver, CO 80203
303-860-0800
800-522-4372
Fax: 303-860-7481
Web site:
http://www.hepc-connection.org/
The Hep C Connection provides the Hepatitis C Network and Support
System to assist hep C-challenged individuals and their families.
Hep C Education and
Support Network *
PO Box 1231
Locust Grove, VA. 22508
504-972-2856
Web site:
http://www.hepcesn.net/
Their mission is to educate the public and promote awareness
through events, programs and the distribution of awareness pins.
Providing support to patients living with hepatitis C with online
support, educational brochures and posters in addition to a toll
free support line. Working with methadone service providers to
educate patients and staff on hepatitis C risks and management.
Think Global, Act Local.
Search Engines , News Sites and Medical Sites
A Site to Search for
Anything
http://www.refdesk.com/
Doctor's Guide to
Medical News
http://www.pslgroup.com/dg/bef56.htm
The following websites
have been chosen for their in-depth coverage of medicine online
and ease of use. Because most of the sites listed are gateways to
thousands of other medical web pages, book marking just one of
them should ensure that you are kept informed and up-to-date.
Medical databases and index sites
BioMedNet
http://biomednet.com/
Hepatitis Weekly
This site has weekly information about the latest hepatitis news,
research from conferences, and journal article summaries.
Abstracts of all stories are available on-line, but a paid
subscription is required to access the full stories.
www.NewsRx.net
Hot Sites - Medical - News
http://www.jr.co.il/hotsites/med-news.htm
Yahoo Breaking News on Hepatitis
http://search.news.yahoo.com/search/news?p=hepatitis&n=10
HCV Advocate
http://groups.yahoo.com/group/HepCNews/messages
HepNet - The Hepatitis Information Network
A Canadian site from HepNet providing information on hepatitis and
also includes news items, current events, a quiz, and a search
engine.
http://www.hepnet.com/
This web site provides access to the official journal of the
American Association for the Study of Liver Diseases.
http://www.hepatology.org/
MedWebPlus: Free service designed to help users sift through the
ever growing amounts of data of/on/about or in any way regarding,
the health sciences on the Internet.
http://www.medwebplus.com/
Johns Hopkins Medical
Institutions' news releases are available on an EMBARGOED basis on
Newswise at
http://www.newswise.com/
and from the Office of Communications and Public Affairs' direct
e-mail news release service. To enroll, call 410-955-4288 or send
e-mail to
bsimpkins@jhmi.edu.
On a POST-EMBARGOED basis find them at
http://hopkins.med.jhu.edu./
Janis and Friends
Hepatitis C News
http://janis7hepc.com/Hep%20C%20News.htm
Reuter's Health News:
http://www.reutershealth.com/
The American Medical Association (AMA) web site has a consumer
health section that includes links to: general health issues,
specific conditions, your body, your family's health, Kids Health
Club, Doctor Finder, Hospital Finder, Medical Group Practice
Finder. The nutrition section has information on such things as
vitamins and fitness. It also has a medical glossary. There is a
link to recipes with new recipes posted every two weeks. This link
also has information on health-oriented cookbooks and nutritional
resources.
http://www.ama-assn.org/
The Lancet is a
peer-reviewed medical journal.
http://www.thelancet.com/
The British Medical Journal is a free publication with up-to-date
information about hepatitis C.
http://www.bmj.com/
Support Sites, Personal Sites, Message Boards
and Chat rooms
Janis and Friends Hepatitis Support Web Site ( Our site with
message boards and chat room)
http://forums.delphiforums.com/friendship7/start
Liver Failure Support Group
a wonderful support forum, with
so much information this is ran by our friend (Imkindly) We have her
wonderful
interview on our Website.
http://forums.delphiforums.com/liverfailure/start
Madman's Web
This web site is dedicated to getting factual information out there about
this disease and how it affects the life and relationships of it's victims,
from my point of view.
http://www.madmansweb.com/hepatitis.htm
Miles Keaton Andrew
Diary of Treatment: Pegasys, Ribavirin, Zadaxin
http://www.mkandrew.com/hope.htm
HEP C HOLLOW
A great
new personal site to visit
http://home.sc.rr.com/fantazmink/HepCHollow/
Dragon Slayers Fighting Hepatitis C
( This is a Brand NEW web site,
go take a look ! )
This
Website has been designed with the intention of presenting the most basic
facts, risks, and symptoms, and direct you to the latest medical news and
clinical information on this disease. There are also many web links to other
related sources on the Web.
http://www.dragon-slayers.org/
Hepatitis C Education
Support Network
A site dedicated to the education and support of people who live
with HVC and the education of the public at large.
http://hepcesn.net/
Hepatitis C and Emotional Healing ( Friend Neelie's Site) This
site is ran by the most caring and giving people.
http://forums.delphiforums.com/depressionhepc/start
Hepatitis Hope
( Our friend Bette's site) Bette spends many hours supporting all
of us who are on treatment. And all others at her site.
http://forums.delphiforums.com/hopenow1/start
Hep Randi Support For Hepatitis
A site ran by a wonderful woman. We have her
interview on our web site. She
has supported so many people over the years, with open arms and compassion.
Please visit her site !
http://groups.yahoo.com/group/HepRandiSupportForHepatitis/
Seekersite ( Where Janis and many of us first found support) Hi
Splash !!
http://forums.delphiforums.com/hepc/start
Hepatitis C & Nutritional Health
This site is ran by one of are very own. Please also see her
nutrition pages on our site. She works so hard, for so many.
http://forums.delphiforums.com/hepcandherbs/start
The Café. The Café
provides hepatitis chat rooms and message boards on a variety
of topics that you may face. Hepatitis topics range from just
diagnosed to ...
http://www.hepatitisneighborhood.com/preview_cafe.htm
More Results From:
www.hepatitisneighborhood.com
Chats for Hepatitis
... scheduled chats dealing with Hepatitis in the **HCV Chat
Room**and a newsletter you
can sign up for. . To get there, simply click on "Chat Rooms" in
the upper ...
http://members.aol.com/ladyelec/chatsfor.htm
HCV (HEPATITIS) E-MAIL AND ONLINE GROUP SUPPORT FOR HEPATITIS
... everyone who wishes to receive mailings about current chat
rooms & support groups;
breaking news, hepatitis related updates and our Newsletter "News
You Can Use ...
http://members.aol.com/CThomp1803/myhomepage/
Hepatitis Foundation
International
http://www.hepfi.org
Counselors can be reached by
calling our toll-free number,
800-891-0707, or
973-239-1035.
Hepatitis Out Reach
Project We Can Help We can help persons affected by the
disease of Hepatitis C adjust to the diagnosis, treatment and life
with HCV.
http://www.hcop.org/mentor.htm
The HEPC Chat Channel (open 24 hours) at
http://www.ariess.com/chat/
where:
a) you will have to log in with your name
before seeing any activity);
b) if you cannot log in, the maximum number
of participants has been reached.
Try again later.
THE LAND OF WAZ HEPATITIS C & CFIDS INFO
http://www.asan.com/users/wazzie/wizpage2.htm
My AVATAR CHAT ROOM .
I'm Open 9AM til 10 or11PM EST
Cindy's Hepatitis C Home
-
links and my personal story + my own chat
room for hepatitis support.
http://members.aol.com/timez18008/hepc.html
More sites about:
Hepatitis C > Personal Experience
Hepatitis Neighborhood
-
resource for people with the Hepatitis C, B, and A viruses.
Offers medical articles, drug development updates, nutritional
advice, newsletter, and chat.
http://www.hepatitisneighborhood.com/
The Garden
( A mix of support for all, our friend Windchimes site) This site
is fun, while still being very informative.
http://forums.delphiforums.com/windchimes2/start
Car's Lilly-Livered Page
-
provides a ICQ chat list, message board, and links related to
hepatitis.
http://www.hep-c.net/
More sites about:
NHCC International Hep Forum Web
Chatroom
The National Hepatitis C Coalition's International Hep Forum
HEPATITIS CHATROOM ALWAYS OPEN FOR HEPATITIS CHATS. ...
http://nationalhepatitis-c.org/hepboards/forum/
Hepatitis Central, Online
Hepatitis Support Group Chats
Hepatitis Central TM. On Line Hepatitis Support Chats. VETS WITH
HEP C. If you
are a veteran with HCV please join others like yourself here to
share. ...
http://hepatitis-central.com/hcv/support/online/toc.html
The Tender Heart A beautifully done site http://forums.delphiforums.com/poetparadise/start
Links to HCV Single Sites
You can leave your profile
there
http://gmwebs.net/schepc/
Singles email addys
http://nationalhepatitis-c.org/singles/list.htm
AOL only) e-mail
Misbiz@aol.com
for info Hep C Singles ...
http://hometown.aol.com/Ladyelec/chatsfor.htm
Pam Langford's Hep C Links
page
http://www.diac.com/~ekwall2/chat/
www.diac.com/~ekwall2/hepchat/links.shtml
Hepsingles match~making and
dating site for singles with HEPATITIS-C flirting strongly
encouraged.......there are many HCV support groups out there, but NO
DATING SITES.....we want to SEE COUPLES, NOT SINGLES
http://groups.yahoo.com/group/hepsingles-1/
HCV Anonymous singles group
http://www.hcvanonymous.com/singles.html
Singles Mingle.
http://groups.yahoo.com/group/HepCingles
HepCingles@yahoogroups.com
HepC-SingleChristains ·
This group is for single Christains that are seeking friendships that
are meaningful and lasting. Share spiritual experiences.
http://groups.yahoo.com/group/HepC-SingleChristains/
FOR SINGLE HEPPERS ~ A
venue for singles . Message boards
http://www.voy.com/16876/
Single Heppers Chat Room
http://www.hepchotel.com/singleschat/chat.html
Ontario HepCsingles - Find
that special person
http://groups.yahoo.com/group/ontariohepcsingles/
www.ssa.gov/pubs/10068.html
SSD's CFS Fact Sheet
www.ssa.gov/odhome/cfsfacts.htm
Toll
Free Numbers To Agencies
http://macdds.org/m_toll.htm
When
we emailed Mike to ask him if we could use his information. He was
more then happy to share it will all. This is only a example of
all the great people out there helping those with Hepatitis. Thank
you so much Mike, you are one in a million.
Please visit Mikes site http://heppie2000.tripod.com/index-3.html
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HONcode principles
of
the Health On the Net Foundation
Verify
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respect your right to privacy. Any and all information collected at this
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and Friends Web Site will be held with the utmost care, and will not be used
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Web Site does not sell, rent, loan, trade, or lease any personal information
collected at our site, including our email lists.
Public Forums
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forums, message boards, and/or news groups available to some users. Please
remember that any information that is disclosed in these areas becomes
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