FAQ

      

 

HepCBC - HEPV-L

HEPATITIS C FAQ

v6

March 2004 

This FAQ is dedicated to the memory of David H. Kehrer, LTC John Heintz (Peters) and his wife Patricia, Daniel Bodiford, Dr. Horst Irmler, Jude Saucier, Capt. Kevin Donnelly, Ron Thiel, ”Uncle” Dave Lang, Guy Thisdelle, “Apache” Pat Davis & Frank Darlington.

http://www.hepcbc.ca./FAQv6.htm

Janis and friends would like to thank all those involved for letting us  use this most informative FAQ list        

   
 
     PART 0: ADMINISTRIVIA
    PART I: THE BASICS
    PART II: MEDICAL ISSUES
    PART III: TREATMENT (Conventional Medicine) 
    PART IV: TREATMENT (Alternative Medicine)
    PART V: NUTRITION
     PART VI: DRUGS AND ALCOHOL
    PART VII: HOW CAN HCV AFFECT MY EMOTIONAL LIFE?
    PART VIII: LIVING WITH HCV
    PART IX: DEALING WITH INTERFERON THERAPY
    PART X: WHERE DO WE GO FROM HERE?
    PART XI: EMPLOYMENT AND DISABILITY
PART XII: IMPORTANT INFORMATION 	

WHERE TO GET THE CURRENT VERSION OF THIS FAQ 

E-Mail : send a message to Peppermint Patti at clotho@bellatlantic.net, or to C.D. Mazoff at squeeky@pacificcoast.net and say “Send me the FAQ please!”

http://members.bellatlantic.net/~clotho

http://www.geocities.com/HotSprings/5670/

http://members.rogers.com/smking/

www.hepcbc.ca  Includes Spanish Version

 
PART 0: Click here for:
ADMINISTRIVIA 
0.01           Introduction 
0.02           Disclaimer 
 
PART I: Click here for: 
THE BASICS 
I.0.1           What is Hepatitis? 
I.0.2           What Happens in the Body? 
I.0.3           What is the Incubation Period? 
I.0.4           How Does Hepatitis C Usually Begin? 
I.0.5           What Are the Different Types of Hepatitis? 
I.0.6           What is the Function of the Liver? 
I.0.7           Hepatitis C (HCV) 
I.0.7a          When was Hepatitis C Discovered? 
I.0.8           Who Gets Hepatitis? 
I.1.0           How is it Transmitted? 
I.1.0a          How is it NOT Transmitted? 
I.1.1           HCV and Blood Transfusion 
I.1.2           HCV and Intravenous Drug Use 
I.1.3           HCV and IV Immunoglobulin 
I.1.4           Neonatal Transfer of HCV 
I.1.5           Other Means of HCV Transmission 
I.1.5a          Sexual Transmission 
I.1.5b          Occupational Exposue (Health Care Workers) 
I.1.5c          Toothbrushes/Razors/Nail Clippers 
I.1.5d          Hemodialysis 
I.1.6           Highly Speculative Modes of Transmission 
I.1.6a          Tears, Saliva, Urine, Other Body Fluids 
I.1.6b          Cat Scratches 
I.1.6c          Mosquitoes 
I.1.6d          Alternative Medical Procedures 
I.1.6e          Household Transmission 
I.1.6f          Other 
I.1.6g          Is HCV Anything Like HIV? 
I.1.7           Prevention 
I.1.7a          When and How Long Can it be Spread? 
I.1.7b          How Can the Spread of HCV be Prevented? 
I.1.7c          Cleaning Up Blood Spills 
I.1.7d          What to do in Case of an Accidental Needlestick 
I.1.8           Whom Should I Tell? 
I.1.9           Can You Get Hepatitis More Than Once? 
 
PART II:Click here for: 
MEDICAL ISSUES 
II.0.1          How Do I Find Good Medical Care for Hepatitis 
II.0.2          Hepatologists and Gastroenterologists   
                (see Appendix D for regional list)
II.1.0          How is it Diagnosed? 
II.1.1          Antibody Tests 
II.1.2          What is a PCR? 
II.1.2a         What is a Genotype? 
II.1.3          Is it Possible the Test Could be Wrong? 
II.2.0          Biopsy 
II.2.0a         What is a Liver Biopsy 
II.2.0b         What Are the Dangers of Liver Biopsy? 
II.2.0c         Will it Hurt? 
II.2.1          Chronic Active and Chronic Persistent 
II.2.2          What Are the Main Symptoms of HCV? 
II.2.2a         Fatigue 
II.2.2b         Right-Side Pain 
II.2.2c         Loss of Libido 
II.2.2d         Red Palms 
II.2.2e         Nausea 
II.2.2f         Brain Fog (Confusion/Forgetfulness) 
II.2.2g         Itching 
II.2.2h         Vision Problems 
II.2.2i         Dizziness 
II.3.0          It’s Not All In Your Head! 
II.3.1          What is the Evolution of the Disease? 
II.4.0          What Other Medical Problems Are Related to HCV? 
II.4.0a         Cryoglobulinemia 
II.4.0b         Thyroid and Autoimmune Problems 
II.4.0c         Rheumatoid Arthritis-Like Symptoms 
II.4.0d         Fibromyalgia 
II.4.0e         Dermatological Manifestations 
II.4.0f         Porphyrins 
II.4.0g         Lichen Planus 
II.5.0          Cycles and Flareups 
II.6.0          Should I be Vaccinated Against Other Types? 
II.7.0          HCV and Women’s Concerns 
II.7.1          How Does HCV Relate to Pregnancy? 
II.8.0          How Does HCV Affect Children? 
II.9.0          What Are the Different Clinical Indications? 
II.9.1          Elevated Liver Enzymes 
II.9.1a         Elevated Alpha-Fetoprotein Levels
II.9.2          Jaundice 
II.9.3          Hepatomegaly/Splenomegaly 
II.9.4          Spider Nevi 
II.9.5          Ascites 
II.9.6          Portal Hypertension/Varices 
II.9.7          Hepatic Encephalopathy 
II.9.8          Cirrhosis 
II.9.9          Fulminant Hepatitis 
II.9.10         Does HCV Increase the Likelihood of Cancer? 
II.10.0         How Many of Us Are There? 
 
PART III:Click here for: 
TREATMENT (Conventional Medicine)  
III.1.0         INTERFERONS
III.1.1         Interferon Monotherapy 
III.1.1a        Intron A 
III.1.1b        When Is Interferon Treatment Not Indicated? 
III.1.1c        Interferon "Breakthrough" and "Non-Response"
III.1.1d        Consensus Interferon
III.1.1e        Alferon 
III.1.1f        Beta Interferon, Recombinant 
III.1.1g        Roferon 
III.1.1h        Lymphoblastoid IFN 
III.1.1i        Mochida Interferon Alpha IFN-Alpha Mochida500
III.1.1j        Omniferon Alpha-IF 
III.1.1k        Veldona Oral Alpha-IFN 
III.1.1l        Omega IFN
III.1.1m        Albuferon
III.1.2         Pegylated Interferon
III.1.2a        Pegylated Intron A (Peg-Intron A)
III.1.2b        Peginterferon Alpha-2a  (Pegasys)
III.1.3         Interferon Combinations
III.1.3a        Interferon and Ribavirin Combined (Rebetron)
III.1.3b        Pegylated IFN and Ribavirin
III.1.3c        Interferon and Iron Reduction Therapy 
III.1.3d        Interferon and Thymosin 
III.1.3e        Interferon and GM-CSF – Combined
III.1.3f        Interferon and NAC
III.1.3g        Interferon and Amantadine
III.1.3h        Interferon and Ofloxacin 
III.1.3i        Interferon and Histamine Dihydrochloride (Maxamine or Ceplene) 
III.1.3j        IFN and Ketoprofen
III.1.3k        IFN and Ursodeoxycholic Acid (Actigall) 
III.1.3l        IFN and VX-497
III.1.3m        IFN and Colchicine
III.1.3n        Triple Therapy
III.1.4         Dosage
III.1.4a        Mega Dosing
III.1.4b        Maintenance Dosing
III.1.4c        Induction Dosing
III.1.4d        Longer Treatment
III.2.0         INTERLEUKINS
III.2.1         Interleukin-10
III.2.2         Interleukin-12
III.3.0         HCV PROTEIN-BASED THERAPIES
III.3.1         Protease Inhibitors 
III.3.2         Polymerase Inhibitors
III.3.3         Helicase Inhibitors
III.3.4         Reverse Transcriptase Inhibitors
III.3.5         VP-50406
III.3.6         Interferon Alpha Gene Therapy 
III.3.7         Ribozyme Therapy 
III.3.8         IRES Inhibitors 
III.3.9         Antisense Based Therapies (Isis 14803)
III.4.0         VACCINES
III.4.1         HCV Antibody
III.4.2         InnoVac-C  
III.4.3         XTL-002
III.4.4         Epimmune Vaccine  
III.4.5         Vical Technology
III.4.6         ChimeriVax Vaccine  
III.4.7         Chiron Vaccine  
III.4.8         Iscoprep 703 ISCOM  
III.4.9         Therapore
III.5.0         OTHER THERAPIES
III.5.1         Nucleoside Analogs 
III.5.2         ACH-126447 (Helioxanthin)
III.5.3         Ampligen 
III.5.4         Enzo Immune Regulator
III.5.5         Geron Telomerase Activation
III.5.6         HE2000
III.5.7         Hypericin (Vimrx, Hifritzen)
III.5.8         Immtech Mono and Dication Compounds
III.5.9         IP501
III.5.10       Macrokine (WF10)
III.5.11       S-28463 (R-848; VML-600)
III.6.0         TRANSPLANT   
III.7.0         OTHERS
PART IV: Click here for: 
TREATMENT (Alternative Medicine)
IV.0.0         Known Herb-Drug Interactions
IV.0.1         Acupuncture 
IV.0.2         Chiropractic 
IV.0.3         Energy Healing 
IV.0.4         Reflexology 
IV.0.5         Homeopathy 
IV.0.6         Reticulose 
IV.0.7         Traditional Chinese Medicine (TCM) 
IV.0.8         Ozone Therapy 
IV.1.0         Herbal Treatments and Vitamins 
IV.1.1         Kombucha Tea 
IV.1.2         Reishi/Shitake Mushrooms 
IV.1.3         Dandelion 
IV.1.4         Milk Thistle 
IV.1.5         Artichoke 
IV.1.6         Licorice Root 
IV.1.7         Spirulina 
IV.1.8         Garlic 
IV.1.9         Thymic Factors 
IV.1.10        Vitamin C 
IV.1.11        Vitamin B12 
IV.1.12        Vitamin E 
IV.1.13        Natural Interferon Boosters
IV.1.14        Other Herbs or Vitamins 
IV.1.15        Water
IV.2.0         Exercise 
IV.3.0         Stress Management 
IV.4.0         Positive Attitude 
IV.5.0         Tai Chi/Chi Kung/Yoga/Meditation 
IV.6.0         Other Ways to Keep Yourself Healthy
PART V: Click here for: 
NUTRITION 
V.1.0          What Should I Do About Nutrition?  
V.1.1          Foods to Avoid 
V.2.0          Nutrition and Cirrhosis 
V.3.0          Coffee, Tea, Caffeine and Other Stimulants 
V.4.0          Salt 
 
PART VI: Click here for: 
DRUGS AND ALCOHOL 
VI.1.0         Alcohol 
VI.2.0         Tobacco 
VI.3.0         Marijuana 
VI.3.1         Cocaine 
VI.4.0         What are the Effects of Recreational Drugs?
VI.4.1         Intravenous Drug Use Precautions 
VI.4.2         Cleaning Fits 
VI.4.3         Methadone 
PART VII:Click here for:
HOW CAN HCV AFFECT MY EMOTIONAL LIFE? 
VII.1.0        How is Depression Related to Hepatitis?   
VII.1.1        Mood Changes 
VII.1.2        Dealing with a Chronic Disease 
VII.1.2a       Accepting
VII.1.3        Dealing with a Lower Level of Energy 
VII.1.4        Irritability 
VII.1.5        How Can HCV Affect My Sex Life?   
VII.1.6        Helping a Friend with Hepatitis C 
VII.1.6a       What Can I Say?
VII.1.6b       What Shouldn’t I Say?
 
PART VIII:Click here for: 
LIVING WITH HCV 
VIII.1.0       Life Problems Created by HCV 
 
PART IX:Click here for: 
DEALING WITH INTERFERON THERAPY
IX.1.0         General Tips From Schering 
IX.2.0         How Does Interferon Work? 
IX.2.1         What Will Interferon Achieve? 
IX.2.2         Clinical Trials 
IX.2.3         Will I Be Able To Continue Work? 
IX.2.4         How Will I Know If The Interferon Is Working? 
IX.3.0         Side Effects 
IX.3.0a        Nausea 
IX.3.0b        Hair Loss 
IX.3.0c        Fatigue 
IX.3.0d        Mouth Problems 
IX.3.0e        Infections 
IX.4.0         Importance of Water 
IX.5.0         Storage 
IX.5.0a        Traveling With Interferon 
IX.6.0         Timing of Injections 
IX.7.0         Injection Hints 
IX.7.0a        Inject Ease: 
IX.7.0b        Bruising And Diluent Amounts 
IX.7.0c        Needle Size 
IX.8.0         Help! I Think I Hit a Vein! 
IX.9.0         What to do When You Can’t Afford the Interferon 
IX.10.0        Interferon Treatment Of HCV With Cirrhosis 
 
PART X:Click here for: 
WHERE DO WE GO FROM HERE?
X.1.0          Long-Term Prognosis (Am I Going to Die?) 
X.2.0          Current Research, Testing, New Drugs 
PART XI:CLick here: 
EMPLOYMENT AND DISABILITY 
XI.1.0         Income Security: Job and/or Disability Benefits 
XI.1.1         How Do I Handle Problems About My Job?   
XI.1.2         Problems in Seeking Disability Benefits 
XI.1.3         Applying for SSI/SSDI 
XI.1.4         Winning Your Social Insurance Claim: 
               15 Mistakes You Cannot Afford to Make
XI.1.5         Applying for Disability in British Columbia
PART XII:Click here for:
IMPORTANT INFORMATION 
XII.1.0        What Else is Important to Know About HCV? 
XII.1.1        HCV Information Resources 
XII.1.2        National (USA)
XII.1.3        Canada 
XII.1.3a       Australia/New Zealand
XII.1.3b       England/Scotland
XII.1.3c       Germany/Austria
XII.1.3d       Uruguay
XII.1.4        HCV Resources on the Internet and Usenet 
XII.1.5        Bibliography: Suggested Reading 
XII.1.6        Newsletters, Magazines and Videos 
XII.1.7        Local Associations and Support Groups 
XII.1.7a       United States
Click here for : Appendix
APPENDIX A:   Where to Get the Current Version of the FAQ
APPENDIX B:   Common Abbreviations and Medical Terms
APPENDIX C:   Some Recommended World Wide Web Sites
APPENDIX D:   A List of Canadian Doctors Specializing 
              in the treatment of  HCV
APPENDIX E:   History of Blood Safety, Canada’s Track Record, 
              and Compensation Issues
APPENDIX F:   The Double Challenge of HIV/HCV Co-infection

 

   
 
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Reviewed March 2004